So the pedi appointment went.... really no where. I do however understand more of where he is coming from. He feels like it is heart related, and that the Cards have access to all the specialist that he needs to see. But for him to order those things it could take months. Here is where I still have a problem....Is he incapable of picking the phone up or faxing something to the cardiologists and them working as a team? seriously ? Why do I even take him to this guy? he does shit. Any concerns that arise he says take him to the card...even when its his job to do something. UGH!
He reluctantly made a referral to a GI Doctor but said it will take months to get in. When we all left and got in the car I decided I was sticking to my goal I had set yesterday, Getting Fox the appropriate care he needs. So I called his Cardiology nurse (she is the best ) She had just talked to Fox's Cardiologist and told her everything that is going on and the back and forth from Doctors. She is referring him to a new pedi and is seeing him on Monday. She also is setting up Fox with a nutritionist. So I feel better that things are gonna start happening They did tell me that when they weigh him on Monday if he hasn't gained a single oz he will be admitted. I'm crossing my fingers that I can get him to gain at least a tad if not more!
On a lovely side note. I am amazed everyday at how sweet my kids are! Last night I put Fox down on the play mat and Every followed suit and then Tripp, they were all giggling. I'm so in love<3
It sounds to me like the original pediatrician doesn't have much experience with cardiology babies and isn't sure what to do. In that case, better to move on and I'm glad your cardiologist has started some action on these things. Will keep fingers crossed that Fox has gained what is necessary by Monday. Awww, that is so cute, I'm looking forward to seeing them tonight :).
ReplyDeleteHello...i have done the same and let my blogging slip...i will carry on but Oscar is 10 weeks old so ive been so busy! I followed Fox's story as he had a similer heart problem to my son...they performed a modified norwood on Oscar at 3 days old...he nearly didnt make it a couple of times but 3 weeks on he was home! What milk are you feeding Fox? Oscar is on a prescribed infant growth catch up milk,full of calories its called infatrini...i dont know if u can get it in the US but Oscar is gaining virtually an ounce a day...maybe a change in Fox's milk may help kick start the weight gain? Im so glad he's doing ok,he'll get there. Oscar will need a series of op's to complete the norwood but he had a hypoplastic aortic arch and stenosis to boot...so its more complex than they thought. I hope Fox picks up soon...i have been struggling with my docs too..my local dr is terrified of Oscar but the hospital only do so much so we are pushed between the two...its a headache! Anyway...sending you support from England. Heidi.xx
ReplyDeleteI have been wondering about him! So glad he is doing well! So strange but fox has the arch thing too and now has stenosis might need surgery to fix that soon.
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