Cardiologist puts foot down!

So the pedi appointment went.... really no where. I do however understand more of where he is coming from. He feels like it is heart related, and that the Cards have access to all the specialist that he needs to see. But for him to order those things it could take months. Here is where I still have a problem....Is he incapable of picking the phone up or faxing something to the cardiologists and them working as a team? seriously ? Why do I even take him to this guy? he does shit. Any concerns that arise he says take him to the card...even when its his job to do something. UGH!
He reluctantly made a referral to a GI Doctor but said it will take months to get in. When we all left and got in the car I decided I was sticking to my goal I had set yesterday, Getting Fox the appropriate care he needs. So I called his Cardiology nurse (she is the best ) She had just talked to Fox's Cardiologist and told her everything that is going on and the back and forth from Doctors. She is referring him to a new pedi and is seeing him on Monday. She also is setting up Fox with a nutritionist. So I feel better that things are gonna start happening They did tell me that when they weigh him on Monday if he hasn't gained a single oz he will be admitted. I'm crossing my fingers that I can get him to gain at least a tad if not more!
On a lovely side note. I am amazed everyday at how sweet my kids are! Last night I put Fox down on the play mat and Every followed suit and then Tripp, they were all giggling. I'm so in love<3

long over due

I kinda bailed on blogging, I could blame it on having 3 kids 2.5 and under being busy and I have no time to myself...but that's not really true. I've  just not in mood because Fox's health is so up and down.
First off I want to say that being a mom of 3 is amazing! Tripp and Everly-Rose and the best older siblings and we fill are days with outings, crafts, gym time, and baking/cooking. Tripp still calls Fox "Boo Boo" due to his scar on his chest. He does say Fox.. but it sounds exactly like F*$%, so I'm not really pushing that ;)
I'm not going to go into grave detail in about the last few months because that would be the longest blog ever. In short Fox has been in and out of the hospital since being home. He had his genetic testing done for Cystic Fibrosis (since he tested positive in the newborn screening for possibly having it) and he doesn't. Major relief!
He has gone from sleeping 36 hrs straight to having seizures and endless amounts of testing. Just when we got all that sorted, he is peeing buckets! and lost almost 1/2 a kilo in 4 days (4 weeks ago) and has since gained none of it back. I don't want to point anyone out so I'll just say. I'm feeling like Fox is being Bounced from Doc to Doc. The Cardio is very concerned, about the weight loss issue and says it needs to be handled by the pedi. But the Pedi think it should be handled by the card. See..? it's like they are playing a game of ping pong with my sons health. I don't care who gets the ball rolling but for F sake its be 4 weeks with NO weight gain. I'm not waiting around any longer and watching him lose weight. What kind of mother would I be? I'm taking all 3 kids to the pedi tomorrow and I'm putting my foot down. Wish me luck?
Being a Mom of 2 healthy children, I feel so blessed. I feel so blessed that Fox is with us and 4 months old now. Now my goal is to get him healthy.